12.28.2013

Nominees


OK, here's where I cheat a bit. Because it's hard to keep track of who has received which award in the past (and I've already dragged this out much too long), I'd like to keep things simple and nominate the following bloggers for whichever one of these awards they haven't yet received / would prefer: Liebster, Stork, or Sunshine. Any of them would apply to anyone below. Just click the links to see the rules and icons.

I hope I haven't just broken some awful taboo. But I think the main rule is to have fun, not guilt, right? We all have some intense things going on, so I'll understand if you don't have time right now, or if you pick just a few favorite questions to answer. If you do participate in any way, please post a comment here that links to your answers and nominees, so that others can go check them out. It's been a fun way to get to know each other outside of the usual focus.

Here are my nominees:

Here are my questions for you:
  1. What was your best moment of 2013?
  2. Are you making any New Year's resolutions? What?
  3. What's something about yourself that you hope will never change?
  4. What's one of your favorite things to do in wintertime?
  5. Aisle or window seat?
  6. What quote / piece of writing is especially close to your heart?
  7. How do you get your news?
  8. What qualities draw you to someone new (friend or significant other)?
  9. What do you look for in a place to live?
  10. Do you have any nicknames? (Come on, we all have at least one!)

Sunshine Award


A big thank you goes out to Lauren at On Fecund Thought, who nominated me for a Sunshine Award!

A Sunshine Award is given to bloggers whose posts brighten your day. Here's how it works:
  1. Include the Sunshine Award icon in your post.
  2. Link to the person who nominated you.
  3. Answer 10 questions about yourself.
  4. Nominate 10 bloggers to receive the award.
  5. Link your nominees and let them know they've been nominated.


Here are my answers to Lauren's questions:
  1. What is your super power? Not a fake one, but something you are good at and can consistently rely on?
    Sifting through a bunch of details to find the bottom line. I guess you'd call that analysis? I can distill two pages of scribbled notes from a doctor's appointment down to a few pro/con tables and bullet points … for whatever good it does. There are literally boxes full of those notes in my closet right now.
  2. What gift (apart from effortlessly making a human) do you wish you had?
    More energy. I know people who come home from a full day of physical work and immediately start cleaning something, before even pausing to sit down. I just stare at them and wonder, What species ARE you? 
  3. Have you read a book more than three times?
    Yes, absolutely. I tend to skim books the first time, then go back and read the good ones more thoroughly—sometimes over and over, noticing new things each time.
  4. What is your mantra?
    Make me a channel of your peace (from the St. Francis prayer). It's a tall order. I just focus on that first image: self-discipline is the structure of the channel, and mindfulness clears a space in the center. The peace isn't something I create; it flows through me in rare moments when I can get myself out of the way.
  5. What's the best piece of advice you ever received?
    It was a question: Do you want to live a life based on fear or a life based on love? Whenever I'm in doubt about what to do, I try to choose the latter.
  6. What made you decide to start blogging?
    This post explains. Basically, it seemed like a way to keep my heart open during difficult times, while connecting with others who are going through similar things, without wearing out my welcome with those who are NOT going through similar things.
  7. What's in your handbag (UK) / purse (US) / "bag you carry around all day" (elsewhere)?
    Not much: cash, cards, keys, phone, mints, and a pen. I'm sort of a minimalist.
  8. What's in your fridge?
    Not much: bean soup from the crockpot, vegetables for juicing, some half-used bottles of salad dressing, and a few leftover IVF meds way in the back.
  9. Do you remember how you discovered my blog? Why do you read it?
    You commented on one of my posts, and it sounded like our situations had a lot in common. More than that, your words hit me in an almost physical way. I sit back and go, "Whoa. Yes, that's it exactly. I just never quite realized it before." Few people can face such difficult emotions head-on—let alone explain them so well, with both honesty and dignity, while right in the middle of it all. I learn from you. I'm encouraged and less alone. Last but not least, I want to be there to cheer when well-deserved good news comes your way!
  10. What makes you feel fabulous?
    Sunrise, a mug of coffee in my lap, an empty road leading somewhere I've never been before.


Next up are my nominees and questions...

Stork Award


A big thank you goes out to Melissa at Ask an Infertile, who nominated me for a Stork Award!

Here's how it works:
  1. Include the Stork Award icon in your post.
  2. Link the person(s) who nominated you.
  3. Answer the 10 questions about yourself.
  4. Nominate as many bloggers as you want to receive the award.
  5. Ask your nominees 10 new questions.
  6. Link your nominees and let them know they've been nominated.
  7. Post the Stork Award icon on your blog side bar if you are so inclined.


Here are my answers to Melissa's questions:
  1. What do you consider to be your best personality trait?
    I'll go with what I said earlier: being thoughtful can be my best and/or worst trait. It's a good thing when it makes me see beyond the surface and live intentionally. It's a bad thing when it makes me morbid.
  2. When you are stressed, what is something you do to relax or cope?
    Sleeping is #1. It's an escape, and it seems to "reboot" me in a way that nothing else can. Exercise and certain kinds of meditation can be healthier and more energizing, if I can manage to get past the inertia and start. Sometimes it's best to "change the channel" totally and just watch a funny movie or ask someone else what's new in his/her life. Being outside is always healing, too; it has a way of putting my life into a larger perspective.
  3. Describe your dream home.
    The lot would be big and private, with trees and garden space. A porch, some window seats, and skylights would help bring the outside in and make the house feel bigger. The house can actually be smallish, ~1,000 square feet, since it will be easier to heat, cool, clean, and maintain that way. I love older houses with solid construction. Add hardwood floors, a fireplace, and a bathtub deep enough to cover my knees, and I'd be in heaven.
  4. What is the best piece of advice you can offer?
    Don't believe everything you think!
  5. What are you looking forward to right now?
    Medical stuff has put most of my plans on hold indefinitely, but I did go ahead and sign up for a retreat in late January. By the time I decided to go for it, there was a waiting list. We'll see if I'm actually able to go.
  6. When  you were young, what did you want to be when you grew up?  Did you stick with that?
    Nope. I went through lots of phases, wanting to be a pilot, a doctor, a reporter... What I do now is less glamorous, but I enjoy it.
  7. What is your favorite thing to eat on Thanksgiving?
    It would have to be the stuffing. But really, it's the combination of everything (including that tiny dab of cranberry sauce, which I never eat at any other time) that makes Thanksgiving dinner great.
  8. What is something you've always loved that most people think is lame or silly?
    The things that come to mind are things that many people like as kids but outgrow as adults, like chasing fireflies in the summertime. I have to do that every year.
  9. What website do you have to visit every day?
    It's varied over the years, but lately it's been Pinterest. I'm very visual, and I love organizing things, so Pinterest is like crack. It can suck up hours and days with no real purpose. Hey, maybe I've found a better answer to Question #8!
  10. Do you believe in magic?
    No, but I believe there are many mysteries I will never understand, and that's OK.


Next up are my nominees and questions...

Liebster Award


A big thank you goes out to Not When, But IF, who nominated me for a Liebster Award!

Here's how it works:
  • Post 11 random facts about yourself.
  • Answer the 11 questions the awarding blogger has posted for you.
  • Nominate 11 bloggers (with less than 200 followers) for the award and link them in your post.
  • Let the bloggers you have nominated know they are nominated.
  • No tag backs.


Here are 11 random facts about me:
  1. Though I've been a total homebody lately, in my teens and early 20s I did quite a lot of traveling. I lived in six US states in seven years.
  2. I've been outside in temperatures from -50 F to +125 F. I much prefer the heat!
  3. Same thing with food: the spicier, the better.
  4. I reuse things until they fall apart: sandwich bags, Christmas bows, my last car, the boxes my meds came in...
  5. I am not just my parents' only child, but also the only grandchild on both sides of my family.
  6. Amazingly, no-one has pressured me to "give them" a grandchild. My little family is wonderful, loving, and kind.
  7. Amazingly, I wasn't too spoiled while growing up, although I did take myself way too seriously.
  8. I probably still do.
  9. Strangely, though, I can laugh much more easily now than when I started TTC.  It's easier to let the small stuff go.
  10. Clumsiness runs in my family. I could barely ride a bike as a kid, then recently relearned as an adult. (Hilarity and bruises ensued.)
  11. Still, I like to do physical work. It has a way of waking up my body and calming down my mind.


Here are my answers to Not When, But IF's questions:
  1. What was the destination of your favorite vacation?  Why?
    On my 20th birthday, I left for a backpacking trip with friends in the western US. We started in a national park, then walked beyond the park boundary, beyond the trails, and out into the canyons where we didn't see another person all week. We felt like explorers from a century ago. There was even a lunar eclipse one night, which none of us expected since we hadn't heard any news. It was magical.
  2. Do you have any pets?  What?  How many?
    One cat. My ex found her as a stray. We thought she may have been abandoned because of some physical problems; if so, whoever left her sure missed out! She's one of those sweet, goofy, dog-like cats who greets everyone at the door tummy-up, who comes trotting into the bathroom to pee whenever I do, and who purrs when I just talk to her in that certain tone of voice. I wish I could be half as well-adjusted as my cat.
  3. What’s your favorite physical asset (don’t be shy!)?
    Probably my hair, despite the recent hack job DIY haircut. I finally had a hairdresser even it out. I was embarrassed, but she was kind. She even said, "Whatever you did … it's actually really not bad!"
  4. How is your life different now from what you thought it would be at this point when you were 20?
    I didn't think I'd still feel like I was waiting for my real life to start, you know? I also have more understanding and respect for some older relatives now. Years ago, I saw the compromises they'd made, saw that their lives seemed less than totally fulfilling, and judged them as having sold out their dreams. Now here I am with almost none of my dreams from age 20 fulfilled. But I guess I'd rather be awake in my own life than asleep having wonderful dreams.
  5. What was the last movie you saw in a theater?  What did you think?
    Gravity. Meh. In Sandra Bullock's first scene, I thought, She looks like she's grieving, and of course I empathized. But there were rave reviews about what a "strong female lead" her character was … hmm. How about a few more movies with REAL strong female leads, who don’t have to float around in their underwear and be coached into their strength by a man?
  6. Name your guilty pleasure TV show.
    OK, this will make me sound like someone's hermit great-grandma, but I don't watch TV. Have never owned one. I watched it plenty as a kid, and I waste enough time online now as it is. During the insomnia after my miscarriage, though, I discovered free online streaming options and watched a whole season's worth of Downton Abbey in three nights. (Now I really sound like someone's great-grandma!)
  7. (Shameless curiosity spurred on by the award rules) How many people follow your blog?  How long did it take you to build up your audience?  How’d you do it?
    Well, Blogger says I have 19 followers, but I know other people follow anonymously by email, etc. It's sort of mysterious. I've been at this for ten months now. I've connected with people by reading and commenting on a lot of blogs, participating in IcomLeavWe, and being listed in blogrolls. I really like connecting with anyone who can relate to something I write, but I never figured it would be a large audience. In fact, I've actually made some choices to limit the number of looky-loos who come here by accident, like choosing NOT to be listed in Google.
  8. How often do you blog?
    When I need to. That's the bottom line. It feels like certain ideas are bubbling up, expanding, taking up more and more brainspace, and there's a sense of relief that comes from getting them out. I've probably averaged about two posts a week, but it really varies. I go through cycles of hibernating, then writing a bunch of stuff all at once. The more I write (even if they're rough drafts that aren't ready to post yet), the easier it is to avoid stagnation (which is good for me, as well as for any readers).
  9. Does anyone in your "real life" know about your blog?
    A few friends and acquaintances read now and then, mostly women who are going through / have gone through similar things. A few others know that I blog but haven't asked for the address, and I haven't volunteered it.
  10. Who was the last person you talked to on the phone?
    My stepdad, to exchange medical info about my mother. *sigh*
  11. If you weren't answering this question right now, what would you be doing?
    I'd be making some dinner, but it can wait a few minutes.


Next up are my nominees and questions...

12.25.2013

Merry Christmas



Just kidding! It's not happiness that offends me, just the pressure to put on a happy face, and that's mostly self-imposed. So as I get ready to go visit my mom in the nursing home, I'm trying to let go of expectations about how Christmas should be, without going into total Grinch Mode. I'm trying, guys:


Merry Christmas to those of you who celebrate. However happy or hard this year has been, I hope that today brings you moments of joy and peace.

12.17.2013

Sympathy Cards Suck


Is it just me, or does anyone else have a problem with mass-market sympathy cards?

Because I had a problem last night. I was browsing (i.e., trying not to have a meltdown) in the "Sympathy / Cheer" section of the card aisle in the grocery store, with "Jingle Bell Rock" blasting on the speaker system. (By the way, why is that necessary? After two or three weeks, the nonstop Christmas carols can be an affront to anyone who's not able to have "the most wonderful time of the year"—in other words, plenty of people.)

I was looking for three cards: one for a relative who lost her husband suddenly a few months ago and is still hurting, one for my mom after her second major surgery in three weeks, and one for my best friend, who just got some horrible news yesterday.

I want to rant and rave on these people's behalf. I want to hug them very tight. But there's no card that conveys those feelings in the card aisle at Giant.

What I want to know is why sympathy messages have to be totally stiff:

With heartfelt condolences.

Because nothing says "heartfelt" like formal words that no-one uses in daily speech.

May you be surrounded by comfort and love at this difficult time.

What's up with all the passive voice ("be surrounded by")?

OK, clearly illness and death are serious. We want to honor the gravity of what's happened. But with language straight out of a legal contract, with the "I" and "you" and therefore the relationship removed, what's left feels so distant. I wonder how much of the formality comes from respect and how much comes from avoidance of anything awkward or sad.

On the giving side, these cards don't feel authentic. On the receiving side, I question how comforting they are, too. When someone wishes you to "be surrounded by comfort and love" when you're not, does it feel as presumptuous as hearing "Have a Holly Jolly Christmas" felt to me last night?

Of course, I can and will add a personal note to each card. The most formal cards are probably intended more for people who don't know the recipient well, so I guess they'll always have their place.

It would just be nice to have a few more options with less flowery wording and more real emotion involved. Maybe we could call them sympathy empathy cards. Anyone want to start an Etsy shop with me?

Empathy vs Sympathy


This little video is just right:
"Empathy is a choice, and it's a vulnerable choice, because in order to connect with you, I have to connect with something in myself that knows that feeling. Rarely, if ever, does an empathic response begin with 'At least...' The truth is, rarely can a response make something better. What makes something better is connection."



12.15.2013

Thank You


Recently (OK, not so recently), three readers nominated me for blogging awards. First of all, THANK YOU!


Your kindness made my day, especially coming from you—all writers whose work I love to read.

I'm sorry that I've been out of touch lately, but mostly I want to take a moment to make clear that I do appreciate your nominations and will reply soon!

12.14.2013

The Compost Pile


It's occurred to me that, except for comments on other blogs and a few "just the facts" TTC posts here, I haven't been writing much lately.

The main reason is a family crisis. Someone dear to me has been in the hospital twice in this past month, and spending time with her almost every day has been my focus. It will be for a while to come.

Also, my life tends to be organized around cycles anyway: cycles of TTC, cycles of moving inward and then outward again. Right now seems to be a time of hibernating, percolating, and, I guess, conserving energy for what lies ahead.

In the weeks that I've been away, I've written the beginnings of many posts in my mind. Then the time comes to get them out, and nope. Ideas go into the compost pile, churn around ... then stay down there to churn around some more. They're not done yet. I'm not worried about it, since there's plenty of fodder there, and compost makes great fertilizer when the time is right.

I'm not worried about my thoughts needing more time to ripen. What I'm worried about are my emotions, which feel awfully stuck and flat lately.

You know that line in my profile about loss and acceptance? Here's the thing: I'm not really sure how to DO the "acceptance" part. This blog is meant to be part of the process, not the result. And lately it feels like the process has gotten stalled.

So this week I met privately with the teacher who leads a drop-in meditation class I've been attending for the last year and a half. I didn't want to go into any details with him, because words sometimes get in my way. I can use them to skip over the actual experience and jump right into "fixing" it, which seems to be counter-productive with grief. He agreed.

Instead, he basically led me through a Focusing session, which involves attention to sensations in the body (the "felt sense") that underlie emotions and thoughts. Staying with the felt sense can lead to unexpected insights (less mystical than I'm making it sound) or a sense of shifting or release. Which is exactly what I need.

Yes, I want to write more about Focusing. In coming weeks, I'll probably be writing less about my own analysis of things and more about whatever practices are helping me to feel less stuck ... after I, you know, actually DO them. Until then, lots of good but unfinished ideas will be getting thrown back into the compost pile.

From Rainer Maria Rilke:
“Be patient toward all that is unsolved in your heart and try to love the questions themselves, like locked rooms and like books that are now written in a very foreign tongue. Do not now seek the answers, which cannot be given you because you would not be able to live them. And the point is, to live everything. Live the questions now. Perhaps you will then gradually, without noticing it, live along some distant day into the answer.”

12.13.2013

The View Through the Windshield


Years ago, I lived in a very small town that was trying to draw attention to its "international" airport. It was international in the sense that, several times a year, a small plane used its single runway for travel to or from Mexico. The town held an "air fair" at the airport one year to raise publicity.

Because there's not a lot to do in small towns, many people came to check out the fair, me included. And because people in small towns tend to help out their neighbors (defined in the broadest sense), I got offered a free flight at the end of the day from a friend of a friend of a friend.

He was the pilot of a small plane. And by "small," I mean that he was able to pull his plane around on the runway using one hand. That was a little alarming, but I had just watched these planes taking off and landing all day without problems, so I climbed into one of the four seats and buckled my seatbelt.

It was totally different from any of my previous trips in jets. For one thing, all the instruments were right there. I could watch for flashing red lights, listen nervously for alarms... but no signs of danger appeared. As I relaxed, my focus drifted beyond the cockpit and out through that fabulous, huge windshield. Whoa, I could see everything! I noticed details I would never see from 20,000 feet. I picked out all the local landmarks. I waved at mountain bikers winding their way along a dirt trail.

Then we banked to the left, and the mountains filled the windshield like a wall. They were 10,000 feet high, so they'd been impressive from the airport on the valley floor. But from this midair vantage point, they seemed so much bigger. They went down for thousands of feet, and they went up for thousands more. They seemed endless.

----------

I thought of that flight lately when I wrote about the depressive fog of TTC for so long. Somehow, looking back to see how far I've come makes the path ahead feel longer, the obstacles more daunting, not less. They block out everything else on the horizon.


In TTC news ... well, there is no news right now. Things are quiet, actually. My next cycle should start early next month.

Wouldn't it be nice to see the outcome as clearly as I saw the peaks from that airplane, or to feel the excitement and expansiveness I did that day? Instead, I'll have to stick with this grounding reminder from Anne Lamott's book Bird by Bird:
"E.L. Doctorow said once said that 'Writing a novel is like driving a car at night. You can see only as far as your headlights, but you can make the whole trip that way.' You don't have to see where you're going, you don't have to see your destination or everything you will pass along the way. You just have to see two or three feet ahead of you. This is right up there with the best advice on writing, or life, I have ever heard."

12.04.2013

IVF Scorecard


Right up front, here's the good news: although it didn't end up falling on a symbolic day, my egg retrieval did go well. It produced an egg. And, amazingly, that egg matured into a five-day blastocyst ... again.

Again, I'm shocked at this good news! And relieved that the choice to return to the far-away clinic seems to be working out. Here's my IVF scorecard so far:

  • Nearby clinic: 1 IVF on max-dose stims  ->  2 unfertilized eggs
  • Far-away clinic: 3 IVFs with no stims  ->  3 top-grade blastocysts

(source)

----------

Wow. I'd like to understand more about WHY these results have been so different.

My RE at the nearby clinic thought that the BCPs in the antagonist protocol may have "over-suppressed" me, making the cycle extra long and thereby damaging the egg quality.

As I understand it, some form of suppression is required at the beginning of a cycle, to keep the body from picking a dominant follicle and producing only one or two mature eggs at a time. On the other hand, too much suppression can make it hard to wake up the ovaries again. Choosing the right amount of suppression is always a balance. Maybe an estrogen-priming protocol would have been better in my case ... but each woman is different, and the only way to know what will work best for someone is to start experimenting.

For what it's worth, I've read lots of comments by women who believe that long, high-dose cycles "fried" their eggs. I've also come across this article (and another, similar one that I can't easily find now), which suggests that when high-dose meds are used, "the resultant eggs have a higher proportion of chromosomal abnormalities than would be expected in untreated women of the same age group."

That research is just getting started. But if high-dose meds are a concern, I wonder how much they can damage egg quality even in cycles much shorter than my epic IVF at the nearby clinic. And here's the main thing I wonder: if meds can damage egg quality AT ALL, then why wasn't I told much, much earlier? It was clear all along that I'd never produce many eggs. It was clear that the quality was probably already poor. Why not prioritize keeping what's left of the quality over (at most) slightly increasing quantity?

Medicated IVF maximizes egg numbers while—potentially—decreasing quality. Of course, no-stim IVF is not a perfect solution either, even for women with DOR. It takes a while to collect several eggs, and fertility keeps declining over time. Also, more egg retrievals will probably be needed than with medicated IVF, and retrievals have some risks. I just wish I'd been better informed about the egg-quality issues. With more info this summer, I probably would have made different choices.

----------

But back to the three embryos mentioned above.

The first resulted in my pregnancy and miscarriage last winter. The two from this fall have now been biopsied and frozen. There's still a very long way to go. I'll do at least one more round of no-stim IVF, then test to see if any of these embryos are chromosomally normal.

I can't forget that my first, doomed embryo looked "beautiful," too, according to clinic staff. It still looks beautiful to me, in the transfer-day photo I saved.

I should also remember that—even with the outcome so uncertain—the results of these last two cycles so far are as good as they could possibly be. They're the best-case scenario. They literally could not be any better.

For today ... let that be enough.

11.20.2013

Thanksgiving Creations


Yesterday was the start of monitoring for my—uh, wow—fourth IVF (third with no stims).

If this cycle follows my body's typical schedule, the egg retrieval will fall on the exact same date as it did last year (that wonderful first time, which produced the short-lived pregnancy).

It will also be Thanksgiving. Wouldn't that be nice? The clinic is open and my holiday plans are simple; all I have to do is show up at a restaurant later with a few close relatives. So it would be no trouble to do both things in one day. In fact, with the Thanksgiving focus on family and gratitude, I can think of no day more fitting to conceive a child!

As it turns out, this November 28 will be special in another way: it will be "Thanksgivukkah," the only time in 70,000 years that Thanksgiving and the first day of Hanukkah will coincide. Though I don't celebrate Hanukkah myself, this convergence—with its hybrid recipes and other once-in-a-lifetime creations—totally makes me smile.

(source)

11.16.2013

The Sadim Touch


Someone just pointed out this Slate article about a new website called Modern Loss. The article says:
"Americans love to talk about people who overcome the odds to survive serious injury or illness, but we don't cope with death very well. Enter Modern Loss, a new website dedicated to helping us stop treating death and grief like embarrassments to be hidden away, and instead have an honest conversation about what it means to mourn. 
The site was started by two women, Rebecca Soffer and Gabrielle Birkner, who lost parents at an early age and who are clearly opposed to the toxic forced optimism [emphasis mine, because I LOVE this phrase] of American culture that can make grief all the more difficult. They promise a website that will be free of people adjudicating how sad you're allowed to feel and a complete ban on the phrase, 'everything happens for a reason.'" 
Did you hear me cheering at that last line? Please, oh please, can we get rid of that platitude?

There, now it's fixed!

So I had to check out Modern Loss, and right away I found a lot to like, especially one post: The Reverse Midas Touch.

While my recent string of losses hasn't been as drastic as what author Abby Sher describes, it has made me wonder if I'm—if not cursed—maybe attracting bad stuff into my life in some subconscious way. Short answer: NO, I don't believe in hocus-pocus. But still, honestly, there are times when I have kind of felt like a freak. There are times when I've been ashamed of my own apparent Sadim (the reverse of Midas) Touch.

Right after my miscarriage, I happened to see this video about stillbirth. The parts that resonated most were the parents who talked about feeling like a bad-luck charm, and those who said that the worst thing was when people refused to talk about their child at all. That is "toxic forced optimism" at work.

I do understand the impulse; I've been guilty of it, too. But I've come to see another way: simple, loving presence. Abby Sher offers it to a sick friend at the end of her post. Others have offered it to me.

One particular time stands out: after the baby’s heartbeat stopped and before the bleeding started, a friend put his hand on my belly and just held it there, silently, head bowed. That simple act of acknowledging that he/she was real and still mattered, even after death ... of coming closer instead of running away ... it was one of the most healing things anyone has ever done for me.

11.15.2013

The Fog


After my recent burst of sunshine, I was shocked by how little time it took for the depressive fog to settle right back down. It's humbling. Whenever I dare to believe that I'm learning to live with or through it (if not "get over" it), there I am stumbling around, lost again.

Why now? No special reason, really. Winter is coming, with its darkness, cold, and relentless (family-focused) Christmas cheer. I just wrote another huge check to the RE. Right after that, the baseline ultrasound picked up a minor problem that meant I'd have to sit out this past cycle.

Of course, none of this stuff is tragic (well, maybe the check...) or new, so you might think that I'd be better at coping with it by now. After all, it's been five years since I started TTC. Then again ... it's been five years.

It just wears me down sometimes.

(source)

10.27.2013

Sunshine Award


What a nice surprise! After several weeks away recently, I came back to find that Melissa from A Place Where I Can Be Me and Ask an Infertile nominated me for a Sunshine Award. Thank you, Melissa! :)

I'm honored to be in such good company. Your words have lifted me up this year, too. Infertility is a lonely situation, so it always touches me when something I write seems to resonate with others.

A Sunshine Award is given to bloggers whose posts brighten your day. The rules*:
  1. Include the Sunshine Award icon in your post.
  2. Link to the person who nominated you.
  3. Answer 10 questions about yourself.
  4. Nominate 10 bloggers to receive the award.
  5. Link your nominees and let them know they've been nominated.


----------

Here are my answers to Melissa's questions from A Place Where I Can Be Me:
  1. What is a quote that you live by or one that really resonates with you?
    "Perfection is attained not when there's nothing more to add but when there's nothing more to take away." (Antoine de Saint-Exupéry, author of The Little Prince and other books) He was a pilot, and this quote was about aircraft design, but the message of simplicity has spoken to me since I first read it decades ago. Lately, though, perfection has much less allure, so I'd better balance out that quote with this other one that's close to my heart: "Whoever sows sparingly will also reap sparingly, and whoever sows bountifully will also reap bountifully." (2 Corinthians 9:6)
  2. What is your favorite word?
    There are so many. There are words that I like for their sound and words that I like for their meaning. For a meaningful word ... I'll go with "yes." To me, it means engaging with the world even when things are really not as I'd prefer.
  3. What word or phrase do you overuse?
    Uh-oh. It's got to be something obscene, said in traffic. I'll spare you the details.
  4. What is one of your guilty pleasures?  It could be a food, a song, a movie, whatever.
    Talenti gelato is my current guilty pleasure. Seriously, I'm embarrassed to take out the recycling bin sometimes.
  5. If your life was a movie, what would it be called and who would play you?
    When my hair was more red, I was told that I looked like Nicole Kidman, but I doubt that she'd be eager to star in "Hope Drives Back and Forth to the Clinic"! It seems like my life has been so dull lately, with everything else on hold.
  6. You have tomorrow off work and you can do anything!  Money is no object!  What are you going to do?
    My first impulse is to go on one last camping trip before winter. Apparently, I need to upgrade my fantasies.
  7. Your going on a 14 hour flight somewhere.  Name three MUST HAVES in your carry-on.
    A long book and music, to help tune out the reality of being trapped on a plane so long, and also a snack.
  8. What is the one thing you want people to remember about you?
    They'll probably remember that I'm thoughtful ... for better or worse. It's a good thing when it makes me see beyond the surface and live intentionally. It's a bad thing when it makes me morbid.
  9. You can change your name tomorrow, no hassle. Would you and if so, to what?
    Probably not. I'm lucky to have a first name I really like and a last name that's OK. It has enough history that I wouldn't want to ditch it altogether. A few years ago, when my ex and I talked about marriage, we talked about combining some letters from our last names to make a new name, which we'd both adopt. I still love that idea.
  10. Fantasy pet (responsibilities, cost, and all realistic things aside)--What would it be and why?
    I can watch birds of prey (hawks, owls, and falcons) for hours. In my fantasy, I'd build a big backyard aviary to care for some that are injured and can't be released. Then I'd hire someone else to defrost all the dead mice at feeding time!
----------

Here are my answers to Melissa's questions from Ask an Infertile:
  1. Where did you come up with the name of your blog (this intrigues me)?
    It comes from the Leonard Cohen song "Anthem," which has these lyrics: "Ring the bells that still can ring; Forget your perfect offering; There is a crack in everything; That's how the light gets in." I know, it's not short and snappy like a blog name is supposed to be. But I love how those lyrics acknowledge that pain and action / growth can coexist.
  2. You have the chance to be told 5 significant events that will occur in your lifetime (what will happen and when).  Do you want to know and why?
    It's a tough choice. If I know, I can prepare for the predestined outcome and not waste time fearing all the other possibilities. But my heart says no—a sense of wonder and hope are essential, too.
  3. If you could do any job, regardless of money or talent, what would it be?
    Nature photographer!
  4. What was your favorite Halloween costume when you were young?
    One year I dressed up as a houseplant. I got to dye my hair green (which may have started the lifelong habit of messing with my hair) and stick leaves and twigs all over myself. No worries about someone else having the same costume that year.
  5. Has infertility changed you?
    For sure. It's made me more compassionate, as I've come to see that everyone goes through truly awful things if they just live long enough. On the other hand, I'm sometimes too freaking depressed to act on that compassion. Now I have this disturbing habit: I start to think about something I like, something I could get excited about, and I'm automatically on guard against "getting too attached," in case it doesn't work out. Thwarting our own desires has a way of sucking the energy out of life.
  6. What is your favorite thing about yourself?
    Why is that so hard to answer? I guess I'd say this: I try to find beauty in places, people, and situations where it's easy to overlook.
  7. You can eat one thing every day for the next month.  What is it?
    Probably salad, because there are so many variations of it (or is that cheating?) and because I won't feel awful at the end of the month.
  8. If you had a superpower, what would it be?
    It would be awesome never to get tired, physically or mentally. I wouldn't need any special strength. No need to lift cars with one finger. Just more hours in the day (with less sleep required) and the alertness to enjoy them.
  9. Would you rather live one 1000 year life or ten 100 year lives?
    Definitely ten 100-year lives. Living through 1,000 years of change sounds overwhelming.
  10. What is your best piece of advice?
    Don't believe everything you think!
----------

Now here are my nominees:

Here are my questions for you:
  1. Where do you feel the most at home (other than, you know, in your actual home)?
  2. What song brings back good memories?
  3. When did you know that you were ready to have children?
  4. What's your next big (non-child-related) goal?
  5. What's one of your pet peeves?
  6. What's one of your favorite keepsakes?
  7. Cats or dogs?
  8. If you could live in any other place or time, what would it be?
  9. If you had money to give away, who would receive it?
  10. When was the last time you laughed really hard?

Though it took me a while to complete the Q&A (Sorry, Melissa!), it's been fun getting to know each other outside the usual focus.

* Of course, it's all optional. The main rule is no guilt! We all have some intense things going on, so I'll understand if you don't have time right now, or if you pick just a few favorite questions to answer. If you do participate, please post a comment that links to your answers and nominees, so that others can go check them out.

10.26.2013

More Not-Awful News!


After the fertilization report, five more days dragged by. The nurse had told me that no news was good news, and each day I sighed with relief when 5 PM passed with no phone call.

I'd expected to feel excited and cautiously optimistic, as I did the one other time I've made it this far. That time, having a fertilized egg—the first ever—felt momentous. I felt responsible for it. Didn't like the thought of it being so far away. I imagined bringing tiny booties to the lab, fussing and brooding over it like a huge mother hen.

Seriously, though, I was desperately curious about this embryo, not just in terms of whether the cycle would succeed, but in terms of its identity. Who might it become? What wonderful tapestry was its genetic code weaving right now? The medical staff and I had set things in motion, but now came the most miraculous part, the part for which we hadn't and couldn't have written a script.

I remember that feeling of awe. During the last five-day wait, I had the excitement of a fresh transfer to come right afterwards, and the innocence of never having had a pregnancy loss. This time a longer road lies ahead, and I'm more aware of each step. This time what I mostly felt was tired and numb—preemptively depressed, as if feeling bad now could keep me from feeling totally wretched if the embryo did not survive.

I KNOW that this is pointless. There's a magnet on my fridge that says, "Worry is like a rocking chair. It will give you something to do, but it won't get you anywhere." I'm not even sure how much of what I felt this week was worry. It had even less clarity. It was more like defensive withdrawal.

----------

On Day 5 I knew that, whatever the outcome, someone from the clinic would call. It was hard to focus on anything else as hour after hour ticked by. I considered writing a post about the wait, then thought, If you write about it, you'll jinx it. I heard a song with sad lyrics and changed it, thinking, If you listen to sad songs, you'll end up sad. I thought of taking a break and calling the clinic myself. If you call them, it will be bad news.

Although I'm grown up, sane, and mostly logical, no, apparently I'm not above magical thinking now and then. I just try not to give into it, since it leads to nothing but more of the same fantasies of control in situations where, clearly, there is none. So I went ahead and called the clinic anyway. And eventually they called back.

Turns out there was more good news. The embryo made it to Day 5, and they were able to do the biopsy and freeze.

I'm in shock. I'm incredibly lucky.

It was Thursday evening when they called. I said a prayer of thanks but still felt mostly numb for hours. Then the tears came and, with them, the thaw. Slowly, the fog of preemptive depression has lifted. Now I'm able again to connect with the wonder that has been here underneath it all along.

Believe me, I know how far this stage is from a birth or even a pregnancy. A five-day blastocyst has, what, about 200 cells? I can't use the word "baby" to describe it, but all the same, these lines from the old nursery rhyme have been echoing in my mind and heart, putting words to the wonder that's there:

Where did you come from, baby dear?
Out of the everywhere into the here...

Into the here.

10.25.2013

It's Not Awful News!


Overall, this cycle has been very low-stress, except for the clinic commute. I wasn't oversuppressed on BCPs, so things moved fairly fast. There were very few medications to order, and they cost under a hundred dollars. No need for five or six FedEx orders per cycle like last time, when I was so anxious about making sure that I had all the necessary meds on time, without wasting a single precious, insanely expensive drop.

Best of all, there was no breathless rollercoaster ride, no wondering if (despite all the meds) I would end up with two eggs, or four, or none at all. There was the daily grind of the commute, but it was a mindless, emotionally neutral sort of grind. One day at a time. Breathe in, breathe out.

----------

The most "interesting" moment came the night I did the trigger. (Although I used no ovary-stimulating drugs, a trigger shot was required for precise timing of ovulation and egg retrieval.) If you're squeamish, this would be a good time to skip down toward the bottom of this post!

I've done a few intramuscular shots before, and while the needles are, um, impressive, they're also very sharp, which is a good thing.Truly, most of the time, there's been no pain at all. There's just that instinctive resistance to doing something your body KNOWS is wrong (stabbing itself) even when your mind says, No problem, it's cool. I imagine that skydivers have to overcome the same instinct when they jump out of airplanes.

Anyway, everything went according to plan. I drew the target, hit the bullseye, pulled back on the plunger, saw no blood, and injected. Then I pulled out the needle and ... instantly, blood poured down my backside. What the...?? There was so much that it ruined my bathroom rug (which was ugly, so no big loss) and ruined my pajamas (which I'd made myself, so grrrrr). I clamped a paper towel over my behind and tried to clean up the mess with one free hand. Bear in mind that it was now after 11 PM, because that was the precise time I was told to do the deed.

The blood didn't stop. I saw more droplets pattering on the floor and realized that the paper towel was now saturated. Not good. Suddenly I felt a little light-headed and queasy. Maybe I'd had my blood drawn too many times in recent months. My blood pressure is always low, so it doesn't take much to make me feel light-headed. I decided that the cleanup could wait and lay down until the feeling passed.

My biggest fear was that this weird occurrence (which I still can't explain) might affect the outcome by letting some of the medication leak out, or whatever. So the next morning I took a home pregnancy test. They measure hCG, which is the same hormone in the trigger shot. A positive test result would mean that I didn't totally screw up the shot. And sure enough, my pregnancy test turned up a strong positive, which (fake though it was) was lots of fun.

----------

Then came the egg retrieval. That was interesting, too. Because this type of IVF retrieves just the one egg that the body normally produces on its own each month, they gave me just a form of "twilight" sedation. In other words, I felt that shit. Feeling someone muck around in your ovaries with a needle isn't great. On the other hand, full anesthesia adds more cost (and risk), which I could do without.

The room had a painting on the ceiling. I guess it was meant to give the person on the table a more distracting, calming focus than a sea of blank ceiling tiles. This painting showed a street with people strolling and French flags hanging from balconies. As the nurse slipped the medication into my IV, she joked, "Are those flags waving now?" I laughed, despite the fact that I was trussed up in knee stirrups (What do you call those things?) and splayed out on the table like a Thanksgiving turkey. "Are the people on the street speaking French now?"

I felt light-headed and spacey, a little more relaxed than I had been, but fully awake. Then came the speculum and needle. It wasn't awful, but it was worse than my first no-stim IVF retrieval. That time, just when my toes were starting to curl and I was starting to think, "Well, this sucks," it was over. This time it went on longer (still probably <30 seconds), because the doctor saw two mature-looking follicles on the ultrasound and cleaned them both out. "Usually, the body picks a dominant follicle and the other egg withers, but you never know..." he explained. As it turned out, there was only one egg. I'm glad he tried both follicles, though. Wouldn't that have been a super-mega bonus prize to get TWO eggs naturally!

----------

The next day, I was out of cell range for a while. When I checked voicemail, there it was: my clinic calling with the fertilization report. I punched in my code, shaking, having flashbacks to that last awful time. But this time it wasn't awful. Oh my God, it WASN'T AWFUL! It was good news! I sat down on the ground in shock—GOOD shock!

Whatever happens now, I feel validated that my choice to return to this clinic was the right one. We've already gotten farther than with last month's "throw the book at it" medicated IVF.

10.21.2013

Moving On


Lately I can't seem to make decisions. Like, about anything. Maybe it started with burnout over medical choices, but now this indecision is filtering down to the smallest details.

In a store tonight, I was trying to decide which type of mouse toy to buy for my cat. There were only two choices, but the first style was kind of ugly, and the second style might be too small. It might get lost under furniture and doors. And who knew if my cat would think the first style was ugly just because I did? Also, BOTH types had small parts; could they come off and be a hazard?? No, probably not. But I still could not decide. I mean, what if I wasted $1.99 ON THE WRONG MOUSE?

Well ... what if I did? With that thought came laughter and instant release. I really don't have to obsess over every single thing, after all. I really can just toss the closest toy into my cart and move on, secure in the knowledge that my cat will be happy tonight and I won't have to waste any more brain cells on this choice. How refreshing.

After agonizing over last month's huge decision for a while, I'm finally moving on medically, too. I'm trying no-stim IVF with my other clinic again. They're the place that got me pregnant last winter. It was a scary choice, because this type of IVF goes against most conventional wisdom, but I think it's the right choice for me.

I've never responded well to stimulation, and the increased expense of full IVF just isn't worth the increased number of eggs produced (if any). More importantly, I'm afraid that the meds may harm what's left of my egg quality. Far better to have one good-quality egg than two bad ones at three times the price. Also, unlike IUI, IVF ensures that the sperm and egg meet. It bypasses problems with the egg entering the fallopian tube or the sperm penetrating the egg. Finally, I'd like to do genetic screening on the embryos, to help make sure that they're healthy before transfer.

This is going to be a long process. I'll do several cycles, do the testing, then—I'm hoping with all my heart—do an FET. Strangely, the fact that it will be a long process is making it feel less stressful, not more so.

The most stressful part is the commute. This clinic is in another state, and the drive there is at least a three-hour round trip (more if there are accidents) through two metro areas. Normally, I like driving. I've driven cross-country (2,000+ miles) several times, but this ... this just sucks. So I leave home at 5 AM to avoid the worst of the traffic. Thank God for audiobooks. They pass the time and calm me down. When I made this trek last winter, I was listening to The Worst Hard Time, a great book about the Dust Bowl and Depression. That sure put my stress into historical perspective!

five lanes going nowhere
(Yes, officer, I came to a complete stop before taking photos.)

10.15.2013

Remembrance Day


After being away for a while, I just realized recently that today is Pregnancy and Infant Loss Remembrance Day, a day intended "to help families live with their loss, not 'get over' their loss."

Today, I'm thinking of my Baby P, who would have been 6 weeks old now. I'm also thinking of a good friend, whose miscarriage ten years ago I virtually ignored in a clueless attempt to help her "get over" it. I said that I was sorry, then focused on her next pregnancy and never brought the first one up again.

Later, I apologized. She basically shrugged. Everyone grieves differently, and she said that my reaction hadn't felt hurtful to her at the time ... but it wasn't helpful either, I know now. Of course, she may have preferred not to talk about details. Still, I wish that I'd reached out and just asked, you know, "How are you really doing?"

Today, I still try to respect people's privacy, but I'm no longer afraid that simply talking about a loss causes grief. The grief is there anyway. For me, talking about it can feel better—more alive—than the dullness of trying to distract myself with less-important things.

So to all who've lost babies before or after birth, I'm thinking of you and them tonight.

source

9.08.2013

This Month's Huge Decision


Another month, another huge TTC decision to make.

I'd really appreciate any input that anyone wants to share. There won't be many more tries, so I'm tied up in knots with wanting to make the "right" choice now.

Sometimes answers come best when I gather the facts and then set them aside for a while. Between thinking about work, lunch, and other regular stuff, I find myself naturally more drawn to one option than another. My heart and head agree. Unfortunately, that's not happening this time.

----------

Yesterday I spent the morning helping a friend with her move to a new house, where we had a great talk about the need to ask for help sometimes. Then I spent the afternoon at a party with other women who were TTC or had recently given birth. They were all around my age. I was hoping that someone in a position similar to mine would be there, that we could help each other—you know, trade info and advice.

It turned out that no-one there had been through more than two IUIs. I didn't realize it at first, so when they asked where I was with my efforts, I rattled off a few facts: gearing up for cycle seven (as an SMC) after last month's failed IVF. They asked if I'd done all those cycles without a break. "Well, no," I said. "There was the miscarriage..."

Luckily, I didn't say much more. There would have been no point, and I didn't want to discourage the ones who were still trying. I don't want to be a bummer, a cautionary tale, the worst-case scenario. But I am. I'm their nightmare.

It sure is weird. I remember when I first read all those IVF terms—FET, ICSI, dp5dt—and thought, No. Way. It seemed as foreign and complex as astrophysics. I had zero interest in it. It would never have any bearing on my life ... until it did. Now I have to remember that what's become normal to me is still foreign to almost everyone else.

Even so, it was a fun afternoon. Everyone was friendly, of course. It does my heart good to talk with other women about lighter things and to be around kids. After all, it's important to look up from my TTC notes sometimes and remember just why I'm doing all this.

---------- 

Now, though, back to the notes and decisions.

The options are another medicated IVF with a different protocol or another natural-cycle (no stimulation) IVF. The former is what most people would consider the logical choice. The latter is what got me pregnant last winter on the first try. You can probably guess which options my head and heart prefer.

I was going to lay out all the pros and cons here. But you know what? It will make my brain explode, and it will put you right to sleep. Instead, here are some questions for those who are familiar with this stuff:

  • Have you used an estrogen-priming protocol after an antagonist protocol? How did the results compare? Was the second one shorter? More effective? (My RE thinks the first one may have "over-suppressed" me, made the cycle extra long, and thereby damaged the egg quality.)
  • I'd never heard the theory about long cycles degrading egg quality. Now I'm wondering: Is the quality degraded by the meds themselves and/or by the extra time it takes the eggs to mature? If meds are part of the problem, how much damage do they cause in a regular (not extra-long) cycle?? I'll ask the doctor next week, but meanwhile I'm very curious.

Which way do we go?

8.26.2013

August 26, 2013


It's finally here: my would-have-been due date. If not for the miscarriage, I would have been 40 weeks pregnant today, if the baby hadn't already arrived.

Strangely, this date hasn't been as upsetting as I'd thought it might be. It's just another day in limbo, and I'm used to that. Yes, I'm thinking about the baby with love. I do that every day. What I don't do is spend much time dreaming about the details of what might have been. Years of infertility have trained me not to get too attached to dreams.

Yes, after 8 or 10 weeks of pregnancy, when I started needing to map out future medical appointments on the calendar, I was bold enough to note all 40 weeks. But I did it in pencil. Wow. It didn't occur to me until today how telling and sad that really is. My due date was never marked with a celebration of circles, exclamation points, and smiles, just a businesslike "40" with a mental asterisk and footnote saying, "if I should really be so lucky after all..."

Nope. 

Daydreams of motherhood require some details. I could fantasize about everything that might have been ... but the truth is that I have no real details about the life who was so briefly here, really here. All I have of him or her are questions. And the only way I can honor him or her is to hold the questions in my heart and just let them be.

Questions and love. Today and every day.

Thank You


To those who've offered sympathy, commiserating rants, and wishes for better days ahead, THANK YOU. On days when everything sucks, it's amazing how much a few kind words stand out and really do help.

8.16.2013

It Hurts Because It Matters


As mentioned before: after some pretty spectacular trial and error, I'm no longer a fan of the "hurry-and-get-over-it" approach to difficult emotions. However well-intentioned it may be, denial simply doesn't work.

Here's what I've come to believe instead:


To put it even more simply:


It mattered.


----------


There comes a time to honor what matters in the only way I can: by offering all that's left of myself, by bowing to all that's here.

8.14.2013

Wordless Wednesday



Grief Isn't Pretty


No, it's not. It's a wild, scary, messy, and personal ride, especially that first day after bad news. And I'd hesitate to write about the details of it here, except that I'm so afraid of the faucet drying up. So why not? Here's a play-by-play report of my Sunday:

10:30   I'm waiting for a call from the RE, but turn off my phone while at a church service. It's a small service in someone's home. I'm able to focus on it only because I don't have much hope about what the RE will say. Mostly, I'm numb. I've been through this before.

11:30   Checking voicemail. Now I'm shaking so hard that I can barely punch the keys. Wanting so badly to hear joy in the RE's voice, but instead hearing the expected, "I'm afraid I don't have good news." He asks me to call back. Why bother? I think. There's nothing more to say now, is there?

12:00   After playing phone tag, we finally talk. It's another discussion about how donor eggs are probably my only hope, followed by another discussion about how at least I don't have cancer, just infertility. He's not insensitive. He's a caring guy and he tried his best. But when the only comfort someone can offer is to remind you that at least you're not dying … well, no, there really is nothing more to say.

12:30   I sit in a rocking chair in the host's living room, frozen except for the rocking, rocking, rocking back and forth. I can't think of one single thing that I want to do, that I'm actually capable of doing. I feel like a rat who's reached a dead end in a maze and just sits down, staring blankly at the wall. One wall is as good as any other.

12:35   Everyone is in the kitchen sharing lunch, so the room is empty except for me and one friend who wants to help but can't, so just sits there staring at me in a most awkward way. It makes me feel even more like a trapped rat. "I don't want to leave you alone." Please, leave me alone, I think, but I can't work up the energy to say it in a tone of voice that I won't regret later on. Even with you staring at me, the fact is that I AM alone with this.

12:40   Since there's nothing I want to do, I just do the next logical thing: join the people in the kitchen. I'm not capable yet of putting on a mask, so when they ask what's wrong, I explain that I've gotten some bad news. They ask with alarm, "Are you alright?" I answer truthfully, "No, but I will be eventually. Thank you for asking."

12:45   I listen to their conversation and eventually join in. At my little table alone, two women are discussing the different treatments they've had for breast cancer, and a third describes an awful genetic disease that is threatening her nephew's life. I am NOT alone, I realize. Not in this moment, anyway. Pain is not what makes me unique; it's the one thing that I share with absolutely everyone.

1:30   I go to the nearest park. I want to throw rocks and beat my fists against the ground, but the part of the park that's normally quiet is now full of parents pushing strollers. And beaming grandparents. I call my parents to give them the bad news. I am so sick of having nothing but bad news to share with the people I love.

1:45   As I watch the happy families strolling by, spending a Sunday afternoon in this most ordinary way, it feels like I'm standing at a pastry counter. I'm gazing through glass at a bounty of exotic, fabulous desserts, which I can admire but never actually touch. It occurs to me that the rest of my life may be like this: the world reflecting my failures back to me, every day, everywhere. It's the worst kind of self-pity. These are just thoughts, and I know better than to believe everything I think. But in this moment, I can't help it. I'm afraid that this feeling will never end.

2:00   I have to go someplace where I can have my impending breakdown / freakout in privacy. So I find some deeper woods and let it fly: pick up the biggest rocks I can lift and hurl them with all my strength. Pick up branches from the ground and smash them against trees, raining arrows of wood down on the forest. I rip the red thread off my wrist. (Long story short, it's symbolized healthy ways for me to seek refuge and maintain hope, and I've worn it since New Year’s Day.) Now I fling the bright thread into the dirt, grind it gleefully down with my heel, even jump up and down on it in a frenzy of destruction. I think of Stephen Crane's poem "In the Desert": "It is bitter, bitter … But I like it, because it is bitter, and because it is my heart."

2:30   It's a full-on, self-indulgent, two-year-old-style temper tantrum. Once it blows over, I sit down, panting and sweaty, on a swing. Yes, there is a deserted playground in the middle of these woods. Everything is mocking me, I'm telling you. For a while, I just swing mindlessly back and forth, and cry.

2:45   Then I start to look around. I notice how TRASHY these woods are, with litter poking through the weeds everywhere. What a bunch of pigs! Incensed, I start gathering the junk. Normally, I wouldn't pick it up with bare hands, or go charging off into brier thickets wearing sandals and white slacks. But what the hell. It's not a day to be rational. It's not a day to question anything that manages to rouse my energy, only to act wherever action is still possible. So I snatch up handfuls of discarded Coke cans, water bottles, candy wrappers. I leave behind the condom but pick up the paper that I realize, with a stab of pain through my chest, is a child's school homework. These PIGS can have children, I complain under my breath. These PIGS can have families, I rant. And me? I guess I'll just be the old busybody who devotes herself to cleaning up THEIR mess!

3:00   I am being ridiculous. I feel maniacal laughter starting to bubble up from a place so deep it hurts, from some well I'd thought was finally, totally dry. WTF, I think. Who else would turn a temper tantrum / pity party into Litter Cleanup Day? But OK. I'm not questioning why right now. I crash out of the woods, arms overflowing with trash, march up to a dumpster, and throw it all in with one final CLANG of disgust. Then I wipe my filthy hands on my pants triumphantly. Because it is bitter, and because it is my heart. Then I walk slowly back into the woods to retrieve my red thread. It's frayed and faded now, caked with dirt. Carefully, I fold it into the pocket of my ruined pants.

4:00   Back home, I still have some anger to burn off. I want to give the anger as much free rein as is safe, because I fear it less than the depression that's sure to follow. So I put on my iPod and run at top speed for three miles, with my angry playlist at top volume. Yes, I actually have an angry playlist ready to go for occasions just like this. It starts off with Hole's song "Violet," which is perfect for today. The chorus, if you can call it that, is Courtney Love screaming, "Go on, take everything! Take everything! Take everything! Take everything!"

4:30   Ouch. I am not used to running at top speed. I've been sedentary, especially just two days after egg retrieval. Now I feel like throwing up. I think about filling the Vicodin prescription I got on Friday, not so much because of physical pain but because I'd prefer not to be fully conscious now. I've never abused painkillers, but I've taken them before (during my miscarriage, most recently) and know that feeling when the buzz hits. I want it now—want it to hit me right between the eyes like a cattle prod. That's why I need to throw the prescription in the trash.

5:00   Instead of taking pills, I take a nap. I love naps.


6:00   Email the church leader to thank her for her message this morning, which was basically about keeping our hearts open despite our fear. Even with all of today's drama, her words have been percolating through my mind all day.

7:00   Dinner. This time it does not involve salmon, kale, avocado, pineapple, or other "fertility foods." It involves sugar. Sugar and a lot of chemicals I can't pronounce. Also caffeine. After weeks without my beloved coffee, I brew my third cup of the day and raise it high in a middle-fingered salute to the universe.

8:00   Start writing about today's news.

To be continued. I'm still careening from fury to despair, from the most embarrassingly immature self-pity to moments of totally unexpected grace.

You know that saying about how what doesn't kill you makes you stronger? That saying makes me gag. Here's what I believe: what doesn't kill you … doesn't kill you ... and some days that has to be enough.

8.11.2013

Grand Total


$14,000+
50 shots
14 days on stims
8 different medications
8 monitoring appointments
3 or 4 mature-looking follicles
2 eggs retrieved

------------------

0 eggs fertilized


8.09.2013

Totals


After weeks of monitoring follicles, wondering if two or three—or only one—would be mature on retrieval day (if retrieval wasn't canceled, that is), I was actually happy to go in with "three or four" mature-looking follicles today. Only two eggs were retrieved.

Clearly, this has not been the most successful IVF cycle ever.

But if even one egg beats the odds, it will all be totally worthwhile.

8.03.2013

Unsubscribe Me, You Heartless Androids


On various blogs, I've seen women write about being flooded with baby-related coupons soon after a miscarriage or stillbirth, and I've cheered when some of those women sent a cathartic reply. No-one has added insult to my injury in that way yet … although who knows? It could still happen. There are a few days left until what would have been my due date.

No, I get a different type of "you've got to be kidding me" mail. They're glossy ads from a certain hospital—the hospital where I went after my HIV exposure three years ago. Yes, the anniversary is this week. This is a month with a lot of memories.

-----

Three years ago, my partner and I had just learned about his positive HIV test from our RE, and I was—to put it mildly—EXTREMELY UPSET. But I was still practical enough to sit down, get online, and (frantically) research what to do next. What a relief to find out that there WAS something I could do!

If someone who's been exposed to HIV seeks treatment with 72 hours, he/she can start a course of antiretroviral drugs known as post-exposure prophylaxis (PEP). They're typically given to medical workers who've had a single incident, like an accidental jab from a used needle. This treatment isn't fast or easy; it takes four weeks, and the side effects can be brutal. Also, there's no guarantee. Infection can still occur, although the rate of infection after PEP drops by close to 80%.

However, there's some controversy about using PEP for exposures that occur outside the workplace. There are concerns about encouraging "unsafe behavior." In other words, if people get the wrong impression that they can just pop a morning-after pill for HIV, they may tend to be less careful.

OK, that MAY be a valid concern, but it's not really relevant here. Mine likely was a single (sort of) and relatively serious exposure, since we spent the whole weekend trying to make babies. We'd timed the visit carefully to coincide with ovulation. It was also the first time we'd seen each other in a month or two. (We were in the process of moving and lived in different states at the time.)

After a year of visiting infertility docs, I was used to unpleasant medical treatments. And now I was informed about PEP, pros and cons. So YES, bring it on! I was still within that precious 72-hour window. But doctors weren't returning my phone calls, so I ended up in the ER.

Where they totally dismissed me. I explained the situation. I argued (with all the civility and logic I could manage). I BEGGED. But no, it was "hospital policy" to reserve PEP for workplace exposures, they said robotically. I couldn't believe it. This was MY body and MY money (I was paying cash) that we were talking about, and I could hear the clock ticking closer to the deadline with each second that passed.

Not only would they not consider letting me make this decision for myself, but they were totally callous about it. They wouldn't refer me to another facility that might help. To top it all off, Dr. Robot told me something untrue that managed to freak me out even worse. He stressed that I'd have to wait a full year to learn my HIV status for sure. Wrong. In fact, I got definitive results—negative—from a viral-load test two weeks later. On Friday the 13th, by the way. It is now my lucky day. I really should play the lottery on Friday the 13th.

Anyway, there was one member of the ER staff who was human. One nurse took a moment to remind me that Magic Johnson has been HIV positive for 20 years now without progressing to AIDS, that it's not the death sentence it used to be. It was a 60-second interaction. It was also the lifeline that helped me to leave there that night with my sanity intact.

-----

A few months later, when the dust had settled, when it was time to get my mind off my own problems and feel useful in some way (since all of my other goals had just collapsed), I filled out a volunteer application at that same hospital. I offered to help shepherd patients through the ER, a function their website said was needed. And hadn't I seen for myself just exactly how much it was needed? Going back there wouldn't be easy. But neither was shutting myself off at home with traumatic memories. Might as well try to replace them with something better.

Nobody contacted me. I'm sure it was nothing personal. In the context of a hospital ER, whatever scene I made that night was nowhere near enough to make my name live in infamy for months afterward. I figured the volunteer coordinators were just busy, or had lost my form, so I gave them a call to follow up. They never did bother to call back.

But boy did they sure manage to add my contact info to their marketing list! Now every few months, just when that awful memory starts to fade a bit, the mailman drops off a helpful reminder about their world-class standards for patient care, blah blah blah. At first I just threw these ads in the trash with a snort of disgust, but since they have the nerve to keep on coming, it may be time to contemplate some kind of reply…