8.26.2013

August 26, 2013


It's finally here: my would-have-been due date. If not for the miscarriage, I would have been 40 weeks pregnant today, if the baby hadn't already arrived.

Strangely, this date hasn't been as upsetting as I'd thought it might be. It's just another day in limbo, and I'm used to that. Yes, I'm thinking about the baby with love. I do that every day. What I don't do is spend much time dreaming about the details of what might have been. Years of infertility have trained me not to get too attached to dreams.

Yes, after 8 or 10 weeks of pregnancy, when I started needing to map out future medical appointments on the calendar, I was bold enough to note all 40 weeks. But I did it in pencil. Wow. It didn't occur to me until today how telling and sad that really is. My due date was never marked with a celebration of circles, exclamation points, and smiles, just a businesslike "40" with a mental asterisk and footnote saying, "if I should really be so lucky after all..."

Nope. 

Daydreams of motherhood require some details. I could fantasize about everything that might have been ... but the truth is that I have no real details about the life who was so briefly here, really here. All I have of him or her are questions. And the only way I can honor him or her is to hold the questions in my heart and just let them be.

Questions and love. Today and every day.

Thank You


To those who've offered sympathy, commiserating rants, and wishes for better days ahead, THANK YOU. On days when everything sucks, it's amazing how much a few kind words stand out and really do help.

8.16.2013

It Hurts Because It Matters


As mentioned before: after some pretty spectacular trial and error, I'm no longer a fan of the "hurry-and-get-over-it" approach to difficult emotions. However well-intentioned it may be, denial simply doesn't work.

Here's what I've come to believe instead:


To put it even more simply:


It mattered.


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There comes a time to honor what matters in the only way I can: by offering all that's left of myself, by bowing to all that's here.

8.14.2013

Wordless Wednesday



Grief Isn't Pretty


No, it's not. It's a wild, scary, messy, and personal ride, especially that first day after bad news. And I'd hesitate to write about the details of it here, except that I'm so afraid of the faucet drying up. So why not? Here's a play-by-play report of my Sunday:

10:30   I'm waiting for a call from the RE, but turn off my phone while at a church service. It's a small service in someone's home. I'm able to focus on it only because I don't have much hope about what the RE will say. Mostly, I'm numb. I've been through this before.

11:30   Checking voicemail. Now I'm shaking so hard that I can barely punch the keys. Wanting so badly to hear joy in the RE's voice, but instead hearing the expected, "I'm afraid I don't have good news." He asks me to call back. Why bother? I think. There's nothing more to say now, is there?

12:00   After playing phone tag, we finally talk. It's another discussion about how donor eggs are probably my only hope, followed by another discussion about how at least I don't have cancer, just infertility. He's not insensitive. He's a caring guy and he tried his best. But when the only comfort someone can offer is to remind you that at least you're not dying … well, no, there really is nothing more to say.

12:30   I sit in a rocking chair in the host's living room, frozen except for the rocking, rocking, rocking back and forth. I can't think of one single thing that I want to do, that I'm actually capable of doing. I feel like a rat who's reached a dead end in a maze and just sits down, staring blankly at the wall. One wall is as good as any other.

12:35   Everyone is in the kitchen sharing lunch, so the room is empty except for me and one friend who wants to help but can't, so just sits there staring at me in a most awkward way. It makes me feel even more like a trapped rat. "I don't want to leave you alone." Please, leave me alone, I think, but I can't work up the energy to say it in a tone of voice that I won't regret later on. Even with you staring at me, the fact is that I AM alone with this.

12:40   Since there's nothing I want to do, I just do the next logical thing: join the people in the kitchen. I'm not capable yet of putting on a mask, so when they ask what's wrong, I explain that I've gotten some bad news. They ask with alarm, "Are you alright?" I answer truthfully, "No, but I will be eventually. Thank you for asking."

12:45   I listen to their conversation and eventually join in. At my little table alone, two women are discussing the different treatments they've had for breast cancer, and a third describes an awful genetic disease that is threatening her nephew's life. I am NOT alone, I realize. Not in this moment, anyway. Pain is not what makes me unique; it's the one thing that I share with absolutely everyone.

1:30   I go to the nearest park. I want to throw rocks and beat my fists against the ground, but the part of the park that's normally quiet is now full of parents pushing strollers. And beaming grandparents. I call my parents to give them the bad news. I am so sick of having nothing but bad news to share with the people I love.

1:45   As I watch the happy families strolling by, spending a Sunday afternoon in this most ordinary way, it feels like I'm standing at a pastry counter. I'm gazing through glass at a bounty of exotic, fabulous desserts, which I can admire but never actually touch. It occurs to me that the rest of my life may be like this: the world reflecting my failures back to me, every day, everywhere. It's the worst kind of self-pity. These are just thoughts, and I know better than to believe everything I think. But in this moment, I can't help it. I'm afraid that this feeling will never end.

2:00   I have to go someplace where I can have my impending breakdown / freakout in privacy. So I find some deeper woods and let it fly: pick up the biggest rocks I can lift and hurl them with all my strength. Pick up branches from the ground and smash them against trees, raining arrows of wood down on the forest. I rip the red thread off my wrist. (Long story short, it's symbolized healthy ways for me to seek refuge and maintain hope, and I've worn it since New Year’s Day.) Now I fling the bright thread into the dirt, grind it gleefully down with my heel, even jump up and down on it in a frenzy of destruction. I think of Stephen Crane's poem "In the Desert": "It is bitter, bitter … But I like it, because it is bitter, and because it is my heart."

2:30   It's a full-on, self-indulgent, two-year-old-style temper tantrum. Once it blows over, I sit down, panting and sweaty, on a swing. Yes, there is a deserted playground in the middle of these woods. Everything is mocking me, I'm telling you. For a while, I just swing mindlessly back and forth, and cry.

2:45   Then I start to look around. I notice how TRASHY these woods are, with litter poking through the weeds everywhere. What a bunch of pigs! Incensed, I start gathering the junk. Normally, I wouldn't pick it up with bare hands, or go charging off into brier thickets wearing sandals and white slacks. But what the hell. It's not a day to be rational. It's not a day to question anything that manages to rouse my energy, only to act wherever action is still possible. So I snatch up handfuls of discarded Coke cans, water bottles, candy wrappers. I leave behind the condom but pick up the paper that I realize, with a stab of pain through my chest, is a child's school homework. These PIGS can have children, I complain under my breath. These PIGS can have families, I rant. And me? I guess I'll just be the old busybody who devotes herself to cleaning up THEIR mess!

3:00   I am being ridiculous. I feel maniacal laughter starting to bubble up from a place so deep it hurts, from some well I'd thought was finally, totally dry. WTF, I think. Who else would turn a temper tantrum / pity party into Litter Cleanup Day? But OK. I'm not questioning why right now. I crash out of the woods, arms overflowing with trash, march up to a dumpster, and throw it all in with one final CLANG of disgust. Then I wipe my filthy hands on my pants triumphantly. Because it is bitter, and because it is my heart. Then I walk slowly back into the woods to retrieve my red thread. It's frayed and faded now, caked with dirt. Carefully, I fold it into the pocket of my ruined pants.

4:00   Back home, I still have some anger to burn off. I want to give the anger as much free rein as is safe, because I fear it less than the depression that's sure to follow. So I put on my iPod and run at top speed for three miles, with my angry playlist at top volume. Yes, I actually have an angry playlist ready to go for occasions just like this. It starts off with Hole's song "Violet," which is perfect for today. The chorus, if you can call it that, is Courtney Love screaming, "Go on, take everything! Take everything! Take everything! Take everything!"

4:30   Ouch. I am not used to running at top speed. I've been sedentary, especially just two days after egg retrieval. Now I feel like throwing up. I think about filling the Vicodin prescription I got on Friday, not so much because of physical pain but because I'd prefer not to be fully conscious now. I've never abused painkillers, but I've taken them before (during my miscarriage, most recently) and know that feeling when the buzz hits. I want it now—want it to hit me right between the eyes like a cattle prod. That's why I need to throw the prescription in the trash.

5:00   Instead of taking pills, I take a nap. I love naps.


6:00   Email the church leader to thank her for her message this morning, which was basically about keeping our hearts open despite our fear. Even with all of today's drama, her words have been percolating through my mind all day.

7:00   Dinner. This time it does not involve salmon, kale, avocado, pineapple, or other "fertility foods." It involves sugar. Sugar and a lot of chemicals I can't pronounce. Also caffeine. After weeks without my beloved coffee, I brew my third cup of the day and raise it high in a middle-fingered salute to the universe.

8:00   Start writing about today's news.

To be continued. I'm still careening from fury to despair, from the most embarrassingly immature self-pity to moments of totally unexpected grace.

You know that saying about how what doesn't kill you makes you stronger? That saying makes me gag. Here's what I believe: what doesn't kill you … doesn't kill you ... and some days that has to be enough.

8.11.2013

Grand Total


$14,000+
50 shots
14 days on stims
8 different medications
8 monitoring appointments
3 or 4 mature-looking follicles
2 eggs retrieved

------------------

0 eggs fertilized


8.09.2013

Totals


After weeks of monitoring follicles, wondering if two or three—or only one—would be mature on retrieval day (if retrieval wasn't canceled, that is), I was actually happy to go in with "three or four" mature-looking follicles today. Only two eggs were retrieved.

Clearly, this has not been the most successful IVF cycle ever.

But if even one egg beats the odds, it will all be totally worthwhile.

8.03.2013

Unsubscribe Me, You Heartless Androids


On various blogs, I've seen women write about being flooded with baby-related coupons soon after a miscarriage or stillbirth, and I've cheered when some of those women sent a cathartic reply. No-one has added insult to my injury in that way yet … although who knows? It could still happen. There are a few days left until what would have been my due date.

No, I get a different type of "you've got to be kidding me" mail. They're glossy ads from a certain hospital—the hospital where I went after my HIV exposure three years ago. Yes, the anniversary is this week. This is a month with a lot of memories.

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Three years ago, my partner and I had just learned about his positive HIV test from our RE, and I was—to put it mildly—EXTREMELY UPSET. But I was still practical enough to sit down, get online, and (frantically) research what to do next. What a relief to find out that there WAS something I could do!

If someone who's been exposed to HIV seeks treatment with 72 hours, he/she can start a course of antiretroviral drugs known as post-exposure prophylaxis (PEP). They're typically given to medical workers who've had a single incident, like an accidental jab from a used needle. This treatment isn't fast or easy; it takes four weeks, and the side effects can be brutal. Also, there's no guarantee. Infection can still occur, although the rate of infection after PEP drops by close to 80%.

However, there's some controversy about using PEP for exposures that occur outside the workplace. There are concerns about encouraging "unsafe behavior." In other words, if people get the wrong impression that they can just pop a morning-after pill for HIV, they may tend to be less careful.

OK, that MAY be a valid concern, but it's not really relevant here. Mine likely was a single (sort of) and relatively serious exposure, since we spent the whole weekend trying to make babies. We'd timed the visit carefully to coincide with ovulation. It was also the first time we'd seen each other in a month or two. (We were in the process of moving and lived in different states at the time.)

After a year of visiting infertility docs, I was used to unpleasant medical treatments. And now I was informed about PEP, pros and cons. So YES, bring it on! I was still within that precious 72-hour window. But doctors weren't returning my phone calls, so I ended up in the ER.

Where they totally dismissed me. I explained the situation. I argued (with all the civility and logic I could manage). I BEGGED. But no, it was "hospital policy" to reserve PEP for workplace exposures, they said robotically. I couldn't believe it. This was MY body and MY money (I was paying cash) that we were talking about, and I could hear the clock ticking closer to the deadline with each second that passed.

Not only would they not consider letting me make this decision for myself, but they were totally callous about it. They wouldn't refer me to another facility that might help. To top it all off, Dr. Robot told me something untrue that managed to freak me out even worse. He stressed that I'd have to wait a full year to learn my HIV status for sure. Wrong. In fact, I got definitive results—negative—from a viral-load test two weeks later. On Friday the 13th, by the way. It is now my lucky day. I really should play the lottery on Friday the 13th.

Anyway, there was one member of the ER staff who was human. One nurse took a moment to remind me that Magic Johnson has been HIV positive for 20 years now without progressing to AIDS, that it's not the death sentence it used to be. It was a 60-second interaction. It was also the lifeline that helped me to leave there that night with my sanity intact.

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A few months later, when the dust had settled, when it was time to get my mind off my own problems and feel useful in some way (since all of my other goals had just collapsed), I filled out a volunteer application at that same hospital. I offered to help shepherd patients through the ER, a function their website said was needed. And hadn't I seen for myself just exactly how much it was needed? Going back there wouldn't be easy. But neither was shutting myself off at home with traumatic memories. Might as well try to replace them with something better.

Nobody contacted me. I'm sure it was nothing personal. In the context of a hospital ER, whatever scene I made that night was nowhere near enough to make my name live in infamy for months afterward. I figured the volunteer coordinators were just busy, or had lost my form, so I gave them a call to follow up. They never did bother to call back.

But boy did they sure manage to add my contact info to their marketing list! Now every few months, just when that awful memory starts to fade a bit, the mailman drops off a helpful reminder about their world-class standards for patient care, blah blah blah. At first I just threw these ads in the trash with a snort of disgust, but since they have the nerve to keep on coming, it may be time to contemplate some kind of reply…


8.02.2013

Going All-In


As the gamblers say, I'm all-in now.

A couple of weeks ago, I made the biggest purchase of my life: a package that includes up to two fresh IVF cycles and two FETs. I went for the whole package because my odds are grim, and it's discounted almost 50% this way.

That's me: weighing the odds and trying to be careful. I am SO not a gambler. In fact, the most money I've ever gambled before was $2 on the nickel slots in Las Vegas. Yeah, seriously. It was a family trip years ago, and my 80-year-old grandmother spent more than I did. Throw in a few raffle tickets over the years, and there you have my whole financial risk-taking profile.

So lately I've been waking up with a start at 3 AM, panicked over the numbers in my head. No, I'm not on the verge of moving into a cardboard box. I just have such minimalist habits that, first of all, numbers this big scare me on a gut level.

Source: Baby Dust Boutique

Some background: in my last apartment, where my partner and I lived for years, my half of the rent was $200/month. (The place was basic and we did major work on it.) I've lived without electricity or plumbing. Never had cable. Kept my last car for 15 years. I've even been cutting my own hair since the unplanned DIY hack job haircut in February has gotten so many compliments (which cracks me up, by the way).

To a point, of course, living simply is great. It's enabled me to have the options I do. But I don't want to cross the line into a stinginess that spreads beyond my wallet into my whole personality. I want it to be about honoring my priorities, not about pride or self-denial. You know? As cold as it is to go around bragging, "Look how much I have," it can be equally cold to go around bragging, "Look how little I need from the world."

Pride and self-denial are tempting when I'm feeling especially bitter. Didn't get something I really wanted? "Well, I've lived without it this long already, so I'll get by. Who cares? There's not much point in caring anyway." What a joyless way to live.

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A few months ago, I had lunch with a relative I don't see often but have always especially loved. I finally told her about TTC, being pregnant, the whole story. It's not like I had meant to keep it a secret. It's just that TTC is usually a private process ... and who knew it was going to take YEARS? But now that it has indeed taken years, it's starting to feel more and more like a wedge between me and the people who don't know. They ask what I've been doing lately, and what can I say? Nothing much that feels authentic.

Maybe I also waited to tell this aunt because she's childless by choice. I knew she'd be supportive in the end, but didn't know if she'd really "get it." Oh, was I wrong. I started explaining about in-vitro fertilization and how it all works, and she interrupted to ask, "Oh, you mean IVF?" She knew all about it. And when I talked about wishing I could go to a certain clinic with very high success rates (and very high prices), she basically said, "You only live once, and this is important to you. Go for it!"

I stuck with my old clinic in the end, but I loved her attitude. This is a woman who lives in a small cabin in the woods and knows all about simplicity. Yet she was the one whose warm heart made me rethink what I really want to put first: frugality for its own sake, or generosity in service of my values (as Carolyn Hax describes so well), even when it scares me a bit. Talking with my aunt reminded me that I can never truly be self-contained, even if I try. And why try? There are things I can give to and things that I need from this world―not lots of material things, true, but sincere relationships, expansiveness, hope.

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So I'm taking a leap of faith. Meanwhile, I'm realizing that what keeps me up at night is not so much worries about the future―although they're certainly there, too―but brooding about the past and how my IVF money "should" have been spent. It should have helped me buy a home. I should be in that home right now with my partner and our child. Then I wake up all the way and look around. And here I am.

I heard someone say once that acceptance means giving up all hope of a better past. Clearly, there's no other choice, is there? So count me in. Whatever the outcome, count me in all the way.